ROSAH Syndrome
Foundation
The little bonzaï that hides the forest ?
Only 18 families have been discovered to date.
They are spread all over the world. This represents about 40 patients.
The discovery of the disease has sparked a connection with all the families and all the wonderful physicians that work on it.
Because every patient has his own array of symptoms among different organs, it makes the diagnostics very complicated. We suspect that there are many more people impacted with this syndrome and undiagnosed. Over 7 million people have uveitis. 10% of those lead to blindness and 20% to 50% of uveitis are idiopathies (i.e without known cause).
ROSAH Syndrome represents a part of them. For that reason, ROSAH families and physicians will fight to include ROSAH to the diagnosis of idiopathic uveitis patients.
The discovery of the disease has sparked a connection with all the families and all the wonderful physicians that work on it.
Because every patient has his own array of symptoms among different organs, it makes the diagnostics very complicated. We suspect that there are many more people impacted with this syndrome and undiagnosed. Over 7 million people have uveitis. 10% of those lead to blindness and 20% to 50% of uveitis are idiopathies (i.e without known cause).
ROSAH Syndrome represents a part of them. For that reason, ROSAH families and physicians will fight to include ROSAH to the diagnosis of idiopathic uveitis patients.
